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Our mission is to...

provide resources and connection to Deaf individuals and their families across the Greater Rochester, New York area by providing

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  • education and resources to hearing parents of deaf children

  • education and resources to businesses that are interested in hiring or recently hired a deaf employee

  • connection opportunities for families

  • a safe space to ask questions in the name of growth

Frequently Asked Questions

For hearing individuals

What is hearing privilege?

“Hearing privilege [is] the unearned advantages, benefits, and entitlements reserved for hearing people that are not based on talent or effort but rather on (hearing) ability status and their membership to the ‘normal’ social group,” (Easier Said Than Done: Undoing Hearing Privilege in Deaf Studies; O’Connell 2021).

 

As a hearing individual, you may not realize it but you have privilege. It’s important that you keep these in mind and understand how they may impact D/deaf individuals. Some of these may be:

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Attending any social event or gathering – as a hearing individual, you can typically attend any event without thinking twice about language barriers, lighting, or networking opportunities.

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Listening to podcasts or audiobooks – as a hearing individual, you can benefit from these services to access information and stories in a variety of settings. Not all podcasts offer captioning and even if they do, there is no guarantee the captions are accurate or a decent quality.

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Going to mainstream schools and colleges without support – this is something that we’ve personally experienced with our son. We are grateful that our school district offers a variety of supports but it involves a lot of consistent effort from both my husband and I and the school. Without a solid team in place, this can be a major stressor. If this is something you’re struggling with either as an individual or parent, please feel free to reach out here.

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Going to the movies – this is also something we’ve experienced. The captioning technology is fairly cumbersome. It is heavy, awkward, and inefficient whether you wear the glasses or use the captioning device. There is also the occasional struggle if the device isn’t linked properly, causing it to be linked to the wrong movie, to lag, or to be choppy. For this reason, our son tends to prefer movies at home though we’re fortunate to live in an area that offers open captioning for certain movies, meaning the captions are on the actual movie screen. If your area does not provide this, I recommend you request it. If you need assistance, please feel free to reach out here.

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Complaining about captioning – in our house, captions are default on all of our devices. As a hearing individual, I have come to appreciate captions as a way to fill in gaps of information I may have missed auditorily. When we visit with others, we request that captions are turned on, especially if our son is present. Most people easily comply, though we have heard the occasional groan and complaint that it’s too distracting. To me, this is an excuse and a very small sacrifice to make the environment more inclusive.

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Making “last minute” plans – typically, professional interpreters request 1 to 2 week notice prior to an event. There have been times that we decide a day or even 5 days prior to an event that we want to go. There’s the stress of do we purchase tickets prior to having an interpreter confirmed or do we try to get the interpreter scheduled first and then buy tickets? But what if they’re sold out? What if there aren’t any interpreters available? Many professional interpreters request that the organization put in the request and not the individual. Who do we contact then? What if they don’t put in the request in a timely manner? This is something we’ve come across time and time again. If this is something you need help navigating, please feel free to reach out here.

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Enrolling in community classes – many of what has been stated above applies here. A lot more effort goes into enrolling than just filling out the application and paying the fee. For example, to get my son enrolled in just a trial for the local swim team, between emails and phone calls with the coaches, I spent literally 2 full days to demystify the perceived hurdles including hiring interpreters, using interpreters, my son’s capabilities, and that it’s ok to not have it all figured out initially. I always end these conversations with “Everything is figureoutable and we’ll work together to get through this.” (Thank you to Marie Forleo for this mantra and your incredible book, “Everything is Figureoutable”). If this is something you need help with, please feel free to reach out here.

 

(Please note that this is not an exhaustive list and just because these have been our personal experiences, that does not mean that all D/deaf individuals have had the same experiences. Each individual is unique, as are their experiences)

 

(list adapted from https://hearmeoutcc.com/hearing-privilege/)

What does D/deaf mean? Why is Deaf capitalized?

Depending on who you’re talking to or what you’re reading, you may see “Deaf” or “deaf”. What’s the difference? “Little d” deaf refers to the actual audiological condition of not hearing. “Big D” Deaf refers to being a member of Deaf culture and using sign language to communicate (http://www.nad.org).

Is relying on lipreading an effective strategy for communication?

The quick answer is no. There are individual differences as with everything else so some may be better at this than others but, in general, it is not only ineffective but it can be considered disrespectful to the D/deaf individual. Only about 30% to 40% of speech sounds are seen, meaning the majority of the message is missed. Not only are most sounds not seen, but many sounds appear identical. For example, both b/p and d/t look the same. The only difference is that /b/ and /d/ are voiced and /p/ and /t/ are voiceless.

 

How can asking a D/deaf individual to lipread be disrespectful? For us, it is upsetting when we come across a hearing individual that asks our son to lipread because the responsibility is then put on him rather than the communication partners working together to ensure both are understood. Some successful ways to communicate may be through texting, writing notes, or voice-to-text apps.

About Interpreters

How to request an interpreter

Usually, the request for an interpreter will need to be submitted by the agency hosting the event/activity. Depending on the agency’s familiarity with the process, I may contact the interpreting agency directly to collect information regarding their process and necessary forms. This applies to events at schools, doctor appointments, community classes, etc.

 

If you would like to request an interpreter as an individual, such as for a wedding, party, personal event, etc., you can contact the interpreting agency directly to set that up. Depending on where you’re located, you may also be able to reach out to local colleges if an interpreting program is offered. The interpreting students are often required to collect volunteer hours to earn their degree. This may be a cost effective option depending on the event.​

Who pays for an interpreter?

In general, whoever is hosting the event pays for the interpreter. As stated above, a cost effective option may be to contact a local college that offers an interpreting program to see if they have interpreting student volunteers that need to collect hours.

Interpreting agencies

This list is geared more towards the Greater Rochester, New York area, though, many services are available remotely through the use of video conferencing.

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If you have an interpreting agency that you like to work with,

please send it here to be added to the list.

ADA

(Americans with Disabilities Act)

The following is directly from the ADA website

​People who have vision, hearing, or speech disabilities (“communication disabilities”) use different ways to communicate. For example, people who are blind may give and receive information audibly rather than in writing and people who are deaf may give and receive information through writing or sign language rather than through speech.

The ADA requires that title II entities (State and local governments) and title III entities (businesses and nonprofit organizations that serve the public) communicate effectively with people who have communication disabilities. The goal is to ensure that communication with people with these disabilities is equally effective as communication with people without disabilities.

This publication is designed to help title II and title III entities (“covered entities”) understand how the rules for effective communication, including rules that went into effect on March 15, 2011, apply to them.

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  • The purpose of the effective communication rules is to ensure that the person with a vision, hearing, or speech disability can communicate with, receive information from, and convey information to, the covered entity.

  • Covered entities must provide auxiliary aids and services when needed to communicate effectively with people who have communication disabilities.

  • The key to communicating effectively is to consider the nature, length, complexity, and context of the communication and the person’s normal method(s) of communication.

  • The rules apply to communicating with the person who is receiving the covered entity’s goods or services as well as with that person’s parent, spouse, or companion in appropriate circumstances.

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For more information, visit the Americans with Disabilities Act website here.

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